Datenspendeausweis für ­Bürger: Ein Plädoyer für mündige Patienten, die die eigenen Gesundheitsdaten am besten verstehen.

We are happy to contribute to the “Management & Krankenhaus” issue Sep 2016. In our contribution, we introduce a data donation pass for patients. With the personal data donation pass, patients get fill access to their personal medical data so they can request and aggregate their data from individual participants in the healthcare system. Furthermore, patients get full control to manage access to their data, e.g. to share a de-identified subset of their data for a specific research project.

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About Matthieu-P. Schapranow

Dr. Matthieu-P. Schapranow received a PhD in Software Engineering from University of Potsdam in Germany in 2012. He also received BSc and MSc degrees in Software Engineering, in 2006 and 2008, respectively from the Hasso Plattner Institute (HPI).Since June 2012, he is Principal Investigator of Life Sciences at the Chair of Prof. Plattner at the HPI and visiting scientist at the Charité - Universitätsmedizin, Berlin. He is a valued member of the Berlin Cancer Society and contributes to the working group e-Health of the Federal Association for Information Technology, Telecommunications and New Media (BITKOM).Dr. Schapranow was honored with the Berlin-Brandenburg Innovation Award for his interdisciplinary cooperation with the Charité in 2012. Together with Prof. Dr. Plattner, he published the textbook "High-Performance In-Memory Genome Data Analysis" on occasion of the World Health Summit 2013.